We have some exciting news to share! A member of our community, Chelsey Jiles, has written a book all about the adventures of her nephew Trae; “Trae’s First Adventure“.
Trae is 3.5 years old, has Xia-Gibbs Syndrome and lives in Houston with his mother Sherri and his family.
The book is a wonderful way to celebrate people with XGS and raise awareness. It’s now available on Amazon at this link.

We can’t wait to get our copy!