Xia-Gibbs Society is the only organization dedicated to supporting the Xia-Gibbs Syndrome community and directly funding XGS research.
There are no other sources of funding committed to this cause – please help us by raising funds!
Xia-Gibbs Society is staffed by volunteers who give up our personal time because we are passionate about our mission. We need help to achieve our ambitious goals! Please consider volunteering, especially if you have skills or experience in fundraising, social media or grant writing!
The Xia-Gibbs Syndrome Patient Registry is a critically important resource for researchers into XGS and the AHDC1 gene which causes it.
It contains information about persons with XGS and their symptoms, as well as biological samples which can be made available to researchers seeking to carry out studies into the syndrome.
Visit our online store for XGS clothing and other items!