Young woman and her little sister who has Xia-Gibbs syndrome XIA-GIBBS SOCIETY is a non-profit formed to support the Xia-Gibbs Syndrome community LEARN MORE
Nathan has Xia-Gibbs Syndrome and lives in Los Angeles
WHAT IS
XIA-GIBBS SYNDROME?
Xia-Gibbs Syndrome (‘XGS’) is a very rare, newly-discovered genetic syndrome in which the AHDC1 gene is mutated or missing.
While only a small number of people have been diagnosed with XGS so far, it is likely there are thousands affected worldwide.
XGS is a neurodevelopmental disorder, which means it affects the way the brain and nervous system function and the way the individual develops.
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