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Dr Jennifer Posey presents at the XGS family conference 2018
By Greg Wilkinson Research Grant

22 Jun: Xia-Gibbs Society Research Grant 2020 – Applications now open!

We are very pleased to invite applications for the first Xia-Gibbs Society Research Grant! Thanks to the successful fundraising activities…

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sponsors copy
By Greg Wilkinson Uncategorized

19 Nov: Sponsor the XGS Family Conference 2020!

In March 2020 families of persons with XGS, researchers and clinicians will gather in Florida, USA, for the third XGS…

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NLM
By Greg Wilkinson Uncategorized

16 Sep: U.S. National Library of Medicine adds entry on Xia-Gibbs Syndrome

https://ghr.nlm.nih.gov/condition/xia-gibbs-syndrome

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By Greg Wilkinson Uncategorized

18 Feb: Xia-Gibbs Society Newsletter 2018

On behalf of the Xia-Gibbs Society, we’d like to thank you again for your support! It is greatly appreciated and,…

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By Greg Wilkinson Uncategorized

10 May: Xia-Gibbs Syndrome study leads to new patient registry

Congratulations to the research team at the Human Genome Sequencing Center at Baylor College of Medicine, who have published their…

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By Greg Wilkinson Uncategorized

14 May: Embracing Emmett

Arika Estep regularly updates this blog about caring for her son Emmett, who was diagnosed with Xia-Gibbs Syndrome in December…

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