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By Greg Wilkinson Uncategorized

10 May: Xia-Gibbs Syndrome study leads to new patient registry

Congratulations to the research team at the Human Genome Sequencing Center at Baylor College of Medicine, who have published their…

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By Greg Wilkinson Uncategorized

14 May: Embracing Emmett

Arika Estep regularly updates this blog about caring for her son Emmett, who was diagnosed with Xia-Gibbs Syndrome in December…

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